Official account and latest updates from the NIHR/UKRI Therapies for #LongCovid Study led by University of Birmingham with @aparitohealth and the MHRA @CPRD
Birmingham, England
Joined February 2021
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🎉New publication 🎉
Non-Pharmacological Therapies for Post-Viral Syndromes, Including Long COVID: A Systematic Review ➡️
mdpi.com/1660-4601/20/4/3477
@JohtChandan @shamilharoon @drmelcalvert @cpror_uob @UoB_IAHR @NIHRresearch #longcovid #systematicreview #covid
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Our patient partners are so talented!
A little overwhelmed when we received this poem from one of our patient partners... #PatientAndPublicInvolvement @LongCOVIDPhysio @LongCovidSOS @LongCovidScot @LongCovid @CPROR_UoB @UoB_IAHR
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Patient and Public Involvement in research is not always easy. But receiving this poem from one of our @tlcstudy #PPI members makes it all worth it!
Thank you all! 🙏
@CPROR_UoB @aparitohealth @drmelcalvert @ShamilHaroon @LongCovid @LongCovidSOS @LongCOVIDPhysio @LongCovidScot
@TLCstudy retweeted
Our @tlcstudy latest paper on Patient & Public Involvement in Health Research has just been published! Huge thanks to our patient partners!
@CPROR_UoB @UoB_IAHR @NatureMedicine @LongCovidSOS @LongCovidScot
To read/download it, please click here ⬇️⬇️⬇️
rdcu.be/dhkO2
Our latest paper on Patient & Public Involvement in Health Research has just been published! Huge thanks to our patient partners!
@CPROR_UoB @UoB_IAHR @NatureMedicine @LongCovidSOS @LongCovidScot @NIHRresearch #PPIE #LongCovid ⬇️⬇️⬇️
rdcu.be/dhkO2
Pleased to say that our team presented their #PPIE work in front of a @unibirm_MDS panel... We were runner-up and received huge praise for our work! All done thanks to our PPIE group!! #LongCovid #patientpublicinvolvement @long_covid @LongCovidSOS @UoB_IAHR
@TLCstudy retweeted
Our #PPIE partners have been involved in our @tlcstudy from the very start & they've co-authored our 🔟#longcovid #ResearchPapers in just under 2 years!🥳 What a journey it's been for them & us!
@LongCOVIDPhysio @long_covid @LongCovidSOS @LongCovidScot @drmelcalvert @ShamilHaroon
In the last 2 years, our #PPIE partners have co-authored all our🔟 publications! Huge achievement thanks to their dedication to the study!
@naturemedicine @TheLancet @bmj_latest @BMJ_Open @BMJ_EBM @EditorJRSM @IJERPH_MDPI #RIEjournal #PatientPublicInvolvementEngagement
In the last 2 years, our #PPIE partners have co-authored all our🔟 publications! Huge achievement thanks to their dedication to the study!
@naturemedicine @TheLancet @bmj_latest @BMJ_Open @BMJ_EBM @EditorJRSM @IJERPH_MDPI #RIEjournal #PatientPublicInvolvementEngagement
***New publication***
Co-production of a feasibility trial of pacing
interventions for Long COVID ➡️ bit.ly/40wj8ca
#PPIE #PPI #pacing #coproduction #LongCovid @long_covid @LongCovidSOS @NIHRresearch @CPROR_UoB @UoB_IAHR @drmelcalvert @ShamilHaroon
***New publication*** Patient & Public Involvement in 9 #longcovid studies, inc. our @tlcstudy
@NatureMedicine publication! #patientandpublicinvolvement
nature.com/articles/s41591-0…
@drmelcalvert @ShamilHaroon @christel_UoB @SarahHughesSLT @lee_1881 @CPROR_UoB
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New @NatureMedicine publication! 🥳
How Patient and Public Involvement was incorporated into #longcovid studies, including our @tlcstudy!
nature.com/articles/s41591-0…
@CPROR_UoB @UoB_IAHR @drmelcalvert @ShamilHaroon @SarahHughesSLT @lee_1881 @NIHRinvolvement @NIHRresearch #PPI
#LongCovidAwarenessDay Finding ways to manage #longcovid is what we are trying to do through #pacing.
Our patient partners have shared their experiences of living with #longcovid ⬇️⬇️⬇️
#COVID19 @drmelcalvert @SarahHughesSLT @lee_1881 @aparitohealth @CPRD @NIHRresearch
Today is #InternationalLongCovidAwarenessDay. Check our our videos from our @tlcstudy patient partners telling us about their experience of living with #longcovid and #COVID19 haven't gone away. @CPROR_UoB
birmingham.ac.uk/research/ap…
Do you have Long COVID?
Do you live in the UK?
Help the @tlcstudy identify remedies, harmful practices, and financial burdens!
Please complete our survey ➡️ redcap.link/TLC-OTC
@LongCovidScot @LongCovidSOS @LongCovidWales @LongCOVIDPhysio
Do you have Long COVID?
Do you live in the UK?
Help the @tlcstudy identify remedies, harmful practices, and financial burdens!
Please complete our survey ➡️ redcap.link/TLC-OTC
@LongCovidScot @LongCovidSOS @LongCovidWales @LongCOVIDPhysio
Do you have Long COVID?
Do you live in the UK?
Help the @tlcstudy identify remedies, harmful practices, and financial burdens!
Please complete our survey ➡️ redcap.link/TLC-OTC
@LongCovidScot @LongCovidSOS @LongCovidWales
@LongCOVIDPhysio #LongCovid
Do you have Long COVID?
Do you live in the UK?
Help the @tlcstudy identify remedies, harmful practices, and financial burdens!
Please complete our survey ➡️ redcap.link/TLC-OTC
@LongCovidScot @LongCovidSOS @LongCovidWales @LongCOVIDPhysio
Do you have Long COVID?
Do you live in the UK?
Help the @tlcstudy identify remedies, harmful practices, and financial burdens!
Please complete our survey ➡️ redcap.link/TLC-OTC
@LongCovidScot @LongCovidSOS @LongCovidWales @LongCOVIDPhysio
Our Symptom Burden Questionnaire can now be translated in hundreds of languages!! #longcovid @SarahHughesSLT @drmelcalvert @ShamilHaroon @Mapi_Trust @UoB_IAHR
birmingham.ac.uk/news/2022/u… via @unibirmingham
Do you have #LongCovid? Do you suffer from #fatigue? Do you live in the UK? Would you like to take part in research? Click here for more details:
tlc-feasibility.atom5.co.uk
@LongCOVIDPhysio @LongCovidScot @LongCovidSOS @long_covid #COVID19 ⤵️⤵️⤵️
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Do you have #LongCovid? Do you suffer from #fatigue? Do you live in the UK? Would you like to take part in research? Click here for more details: tlc-feasibility.atom5.co.uk/
@LongCOVIDPhysio @LongCovidScot @LongCovidSOS @long_covid #COVID19 ⤵️⤵️⤵️
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@TLCstudy retweeted
If you have #LongCovid or know anyone who suffers from Long COVID, if you live in the UK, join our feasibility trial! tlc-feasibility.atom5.co.uk/
@LongCovidSOS @long_covid @LongCovidScot @LongCovidWales @tlcstudy @UoB_IAHR
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RESEARCH PARTICIPATION OPPORTUNITY!
Have you got #LongCOVID and do you experience #fatigue?
Do you live in the UK?
Would you like to take part in a research project?
For more information click here:
tlc-feasibility.atom5.co.uk
@long_covid @LongCovidSOS @LongCovidScot
RESEARCH PARTICIPATION OPPORTUNITY!
Have you got #LongCOVID and do you experience #fatigue?
Do you live in the UK?
Would you like to take part in a research project?
For more information click here tlc-feasibility.atom5.co.uk
@long_covid @LongCovidSOS @LongCovidScot
@TLCstudy retweeted
Article about how the @tlcstudy study, which we are partners in, is using data to better understand #LongCovid and provide meaningful patient benefit
The researchers hope their Symptom Burden Questionnaire will help identify safe and effective treatments
pharmaceutical-technology.co…