@tlcstudy

Official account and latest updates from the NIHR/UKRI Therapies for #LongCovid Study led by University of Birmingham with @aparitohealth and the MHRA @CPRD

 Birmingham, England
birmingham.ac.uk/tlc
Joined February 2021
  • Tweets108
  • Following55
  • Followers338
17Media
Our @tlcstudy latest paper on Patient & Public Involvement in Health Research has just been published! Huge thanks to our patient partners! @CPROR_UoB @UoB_IAHR @NatureMedicine @LongCovidSOS @LongCovidScot To read/download it, please click here ⬇️⬇️⬇️ rdcu.be/dhkO2
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Our #PPIE partners have been involved in our @tlcstudy from the very start & they've co-authored our 🔟#longcovid #ResearchPapers in just under 2 years!🥳 What a journey it's been for them & us! @LongCOVIDPhysio @long_covid @LongCovidSOS @LongCovidScot @drmelcalvert @ShamilHaroon
@TLCstudy@tlcstudy24 Apr 2023
In the last 2 years, our #PPIE partners have co-authored all our🔟 publications! Huge achievement thanks to their dedication to the study! @naturemedicine @TheLancet @bmj_latest @BMJ_Open @BMJ_EBM @EditorJRSM @IJERPH_MDPI #RIEjournal #PatientPublicInvolvementEngagement
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If you have #LongCovid or know anyone who suffers from Long COVID, if you live in the UK, join our feasibility trial! tlc-feasibility.atom5.co.uk/ @LongCovidSOS @long_covid @LongCovidScot @LongCovidWales @tlcstudy @UoB_IAHR
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Article about how the @tlcstudy study, which we are partners in, is using data to better understand #LongCovid and provide meaningful patient benefit The researchers hope their Symptom Burden Questionnaire will help identify safe and effective treatments pharmaceutical-technology.co…

UK health data collaboration paves the way to study long Covid symptoms - Pharmaceutical Technology

The University of Birmingham's long Covid study is one of the success stories of data-driven healthcare, writes Dr Sarah Hughes.

pharmaceutical-technology.com
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Losing your hair and having a low sex drive have been identified as new symptoms of Long Covid. itv.com/news/central/2022-07…

Hair loss and low sex drive are symptoms of Long Covid, study says | ITV News

A study by University of Birmingham recognises new Long Covid symptoms, including erectile dysfunction and hair loss. | ITV News Central

itv.com
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@TLCstudy retweeted
@TLCstudy@tlcstudy9 Jun 2022
In our 2nd @tlcstudy webinar, @lee_1881 will tell us about the impact of #LongCOVID on people's quality of life. Please join us on Monday 13th June at 12pm! bham-ac-uk.zoom.us/j/8589802… @drmelcalvert @ShamilHaroon @gracemturner @SarahHughesSLT @long_covid @LongCovidSOS @LongCovidScot
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***10mins warning*** Our first #LongCOVID webinar is starting in 10 minutes. Join us on Zoom to learn about what we have achieved so far in our @tlcstudy! bham-ac-uk.zoom.us/j/8613911… @drmelcalvert @CPROR_UoB @ShamilHaroon
Dr Christel McMullan 🎾 🇨🇵 🇮🇪 🇪🇺@christel_UoB1 Jun 2022
#LongCOVID webinar on Monday 6th June, 12-12.30pm tp introduce our @TLCstudy! bham-ac-uk.zoom.us/j/8613911… Please share!!
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@TLCstudy retweeted
Sky News
@SkyNews15 May 2022
The number of people seeking help for long COVID has doubled and the NHS is struggling to keep up, a charity has warned trib.al/ekddjO4

Long COVID sufferers 'considering buying own oxygen' as number seeking help doubles, says charity

The NHS says it's spent £220m opening dozens of long COVID centres around the country, but some sufferers report waiting many months to be seen and a charity wants the government to boost clinic...

news.sky.com
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Our team member and trustee Karen Matthews was closely involved in the creation of this #LongCovid symptom burden tool developed as part of the @tlcstudy It is hoped that the tool may be used to support the development of new therapies for #LongCovid med-technews.com/news/Covid-…
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Thanks to all who attended our @tlcstudy consensus workshop today! Lots of discussion and great ideas shared. #longcovid @CPROR_UoB @gracemturner @drmelcalvert @ShamilHaroon
Grace Turner@gracemturner9 Feb 2022
All prepped for the @tlcstudy Consensus Workshop today. Excited to be joined by so many stakeholders with experience and expertise in #LongCOVID @CPROR_UoB
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Please RT For anyone interested in research on Long Covid - a new involvement hub to facilitate conversations and exchange between people affected by and researching Long Covid.
Imperial Patient Experience Research Centre (PERC)@Imperial_PERC12 Jan 2022
Launching the Long COVID Research Involvement Hub. Developed with @VOICE_Global & our public partners. The hub is a #collaborative space where patients & researchers can connect to co-create & share ongoing research into #LongCovid Explore the hub: bit.ly/30VJoCV
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👇🏼read our summary here in @NatureMedicine of some of the major epidemiological studies in the UK on #longCovid. It’s great to collaborate in real time and share insights and hopefully improve understanding and care. Thanks @kamleshkhunti, @CMO_England @Know_HG @long_covid
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We now have a study website for STIMULATE-ICP stimulate-icp.org/ for more information and regular updates for patients, researchers and health professionals. @LongCovidSOS @long_covid @LongCOVIDPhysio
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IMPACT has £15m to invest in implementing evidence in adult social care. Please shape how we use this funding via a short survey. You can choose English, Welsh, Polish, Punjabi, Urdu, Bengali or Gujarati (all via bit.ly/3iZDjKK) or easy read (bit.ly/3rCB5ow)
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This is why #research into #LongCOVID like the @tlcstudy is hugely important! @CPROR_UoB @unibirm_MDS @drmelcalvert @ShamilHaroon bbc.co.uk/iplayer/episode/m0…
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"Many young people are suffering from #LongCovid, which experts still do not full understand. It would be wrong & irresponsible, because our young people are not guinea pigs, to have no concern at all for young people infected with this virus.” - @guardian theguardian.com/politics/202…
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So now we’re supposed to get on board the message that it’s in the best interest of our children to let covid spread in their settings without trying to stop it infecting them while we the adults sit back masked & vaxxed. I’m sorry I can’t. It’s a nasty virus& #LongCovid is real.
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Huge thanks to everyone who completed the Symptom Burden Questionnaire for #longcovid. We really appreciate your support! 🌟 We still need volunteers! If you have LC & want to help a national study ⬇️: sbq-lc.atom5.co.uk/subject/c… @long_covid @LongCovidSOS @LongCOVIDPhysio @DHSCgovuk
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Norwegian study🇳🇴: More than half of young people with mild #COVID19 infections experienced #LongCOVID sciencenorway.no/a/1880560

Norwegian study: More than half of young people with mild Covid-19 infections experienced Long Covid

Six months after the infection, more than 50 per cent of young adults aged 16-30 still had symptoms such as fatigue, shortness of breath and trouble concentrating.

sciencenorway.no
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Thanks to all those with #LongCovid who have helped. We really value your support 👏We are still looking for further input to ensure this captures important symptoms @LongCovidSOS @LongCovidWales @LongCovidNL @LongCOVIDPhysio @LongCovidCH @long_covid @LongCovidScot @JimBethell
@TLCstudy@tlcstudy28 Jun 2021
Help the University of Birmingham test a new questionnaire for #LongCovid. The Symptom Burden Questionnaire measures Long Covid symptoms & their impact. If you are a person with Long COVID, please go to sbq-lc.atom5.co.uk/subject/c… for info. @LongCovidSOS @LongCOVIDPhysio @DHSCgovuk
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