UKIVAS (@ukivas) header
UKIVAS (@ukivas) profile picture

The vasculitis rare disease group of the UK and Ireland

Joined December 2014
Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)Photo by UKIVAS (@ukivas)
Excellent second morning @ukivas #ukivas #Vasculitis Educational Course #Manchester Midlands Hotel
1
3
9
455
UKIVAS retweeted
Dr Steve McAddoo presenting Anti-GBM disease treatment recommendations at the @ukivas educational course 2023. Fascinating to hear that the treatment is more or less the same in the last 50 years and that relapse is extremely uncommon. #vasculitis @vascuk
1
3
13
986
Excellent talk from @DocL_Floyd on vasculitis in the elderly @ukivas - emphasising that frailty in older vasculitis patients is dynamic, and may reflect burden of disease activity. So avoid under-treating the elderly, who generally do better with immunosuppression than without!
8
1
35
2,985
UKIVAS retweeted
A suburb presentation about EGPA #vasculitis & anti-eosinophil therapies by @Allysonegan1 at the @ukivas training course 2023 @vascuk @_ERNRITA
1
4
14
776
Relapse: not the worst thing that can happen? Fascinated to hear thoughts of nephrologists, rheumatologists and, of course, patients in response to this question! @ukivas educational meeting @EdinburghBean @salama_alan @Robsonjo4 @BrixSilke @ZoiAn2 @vascuk – at Manchester, England
1
5
15
1,647
UKIVAS retweeted
Two days full of captivating sessions at the @ukivas educational course 2023. @stephenmcadoo @Robsonjo4 closed the event, thanking Dr Nina Brown and the trainees who worked hard to make this a success! Congratulations 👏 #vasculitis @GlomerulaRajah @vascuk
1
3
1
17
2,781
Always a pleasure to hear @AKronbichler talk- giving us an update on EULAR 2022 recommendations @ukivas training course
1
4
13
889
A great first day at our @ERANET_PerMed funded @PARADISE__AI Plenary Meeting in #Zagreb - looking forward to more discussions on personalised relapse prediction in #autoimmune #diseases in day 2!! #vasculitis #research
2
4
15
1,393
Getting ready for day 2 of @PARADISE__AI plenary meeting @catholicuniversity in #Zagreb. Looking forward to @odlerb wisdom. Fab consortium!
3
2
12
2,818
As part of @ScienceWeek Calling men over 60, #GAA members and #SpecialNeeds assistants: public education on #genomics : ipposi.ie/2023/10/12/registr…
1
3
3
519
UKIVAS retweeted
We celebrated John's life today. We heard about his long journey and his great achievements. We heard of all the aspects of his life, the family, man, the dentist, the villager, the advocate. One thing is sure, he touched so many lives. Thank you John! @vascuk
Goodbye John. Thank you so much for all you have done for this world, specially those affected by vasculitis. We will forever be thankful. Such a lovely service today 😢. Donations in memory here: justgiving.com/page/dorothy-… @vascuk @ZoiAn2 #vasculitis #hero
7
31
3,179
Our latest Episode will be out tomorrow. We’re thrilled to speak to Prof Mark Little @kiplet69 all about ANCA Associated Vasculitis @THKC1 @_ERNRITA
7
20
1,179
Our new episode is now out. We spoke to nephrologist and ANCA expert Prof Mark Little @kiplet69 all about Vasculitis, identifying it, treating it, and biomarkers of disease. Tune in now wherever you get your podcasts! @THKC1 @_ERNRITA
7
2
14
3,499
Meet our @PARADISE__AI Researcher - Angel Mary George! In this @ERANET_PerMed funded project, the smarts of Researchers like Angel ensure the quality of our data #europeanresearchersnight #STARTatERN
Meet the Researcher! Angel Mary George from @PARADISE__AI @MedTcd believes #researchMATTERS because it unravels the hidden mysteries of the world and contributes valuable knowledge and advancements to society. #EuropeanResearchersNight #STARTatERN 🔗start-ern.org
3
4
714
❓Would you be comfortable stopping #maintenance therapy once clinical #remission has been achieved in #AAV? 🔸Discover all the approaches we've covered in our latest article. @SavinoSciascia @THKC1 @autoimmunitymd sciencedirect.com/science/ar…
7
1
12
1,761
🔴How do we detect and treat chronic poliovirus excretors among PIDs? How do regional PID societies might help global polio eradication programme in identifying potential poliovirus excretors? Register to our next webinar to learn more about this! 👉bit.ly/3QVubtd
4
7
894
Not again! Can’t even blame a dark morning this time.
3
1
1
8
497