TheUpsofDowns (@upsofdowns21) header
TheUpsofDowns (@upsofdowns21) profile picture
Joined July 2016
Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)Photo by TheUpsofDowns (@upsofdowns21)
Wonderful to meet many amazing people with Down’s @NDSPolicyGroup today. Down’s is not a barrier to potential, which is why I was proud to support @LiamFox’s Down Syndrome Act last year and why our reforms to SEND provision for children matter so much. #WorldDownSyndromeDay2023
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Proud to be in the top three Twitter accounts most mentioned by MPs in the last 24 hours. With your support we have raised the profile of people with #DownSyndrome to a new height. It is inspiring to see our Advisory Group members speak for themselves at the highest level.
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It was fantastic to mark #WorldDownSyndromeDay yesterday with @NDSPolicyGroup, celebrating the achievements of people with Down Syndrome and hearing more about how the landmark #DownSyndromeAct is changing lives. Really inspiring! #WDSD2023
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We are very proud of our Advisory Group members who are being hosted at Downing Street before attending the debate and participating in the round table discussions afterwards. Thank you to everyone who has supported our efforts in making this happen.
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We are so proud of our Advisory Group members who have worked so hard to raise the voice of those with Down syndrome at the heart of government. Our work is only going to grow and their voices will become louder.
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It is a privilege to be the secretariat for the @APPGDS and to support such dedicated MPs who are committed to #ChangingTheNarrative
Thank you to our Chair, ⁦@LiamFox⁩, for organising this debate to coincide with celebrations for #WorldDownSyndromeDay.
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Highlight of the week was meeting these great young people in Parliament with @VotePursglove @NDSPolicyGroup #WorldDownSyndromeDay2023
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TheUpsofDowns retweeted
Glad to raise diagnostic overshadowing with minister @mariacaulfield today @UKDowningStreet and need for a designated consultant in every hospital to see every patient with a learning disability to make sure nothing is overlooked in assessing symptoms and other issues.
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Advisory Group member, Harshi, shares her experiences at the round table discussion following the Down syndrome debate in the ⁦@HouseofCommons⁩ organised by ⁦@LiamFox⁩. ⁦⁦Minister @mariacaulfield⁩ chaired the meeting. #ChangingTheNarrative #DownSyndromeAct
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Big congratulations to supporter @DownsyndromeUk @PositiveaboutDS on their new website. They offer a dynamic, professional and super supportive service, particularly to expectant & new parents, complimenting the fabulous work by regional DS support groups downsyndromeuk.co.uk/
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I just registered! Very exciting to hear about this and listen to your inspirational presentation last night. Do you know my pal Nicola @PositiveaboutDS @upsofdowns21? 🍋💡🍋 We need a gathering in the UK too @BobKlaber 😉
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October is #WorldDownSyndromeAwarenessMonth here at pads we want to get to know you! So have these prompts for each day of October. Please do tag us and we will reshare as many as we can #PADSGTKM
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There's just under two weeks left of #DownSyndromeAwarenessMonth! If you'd like to join us for 'Dress up for Down syndrome' or Pounds4PADS, sign up today: dsuk.force.com/community/s/O… or email us [email protected]. We'd love to hear from you! #charitytuesday
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Dear @AndrewSelous Next week @PositiveaboutDS will be at Westminster, and Eliza would love for you to visit them in the Upper Waiting Hall anytime on Monday 24th - Thursday 27th October to hear why You-can't-put-me-Down syndrome! Your support is much appreciated.
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TheUpsofDowns retweeted
BREAKING NEWS: The #DownSyndromeBill has today received Royal Assent. This means England has become the first country in the world to recognise those with #DownSyndrome under law, giving thousands of people in this country better access to the services they need. @NDSPolicyGroup
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TheUpsofDowns retweeted
The #DownSyndromeBill received Royal Assent in @UKParliament today. A huge thank you to everyone involved and all those who have supported. 👇 #DownSyndrome @HouseofCommons @UKHouseofLords @NDSPolicyGroup
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TheUpsofDowns retweeted
That’s our friends Tom Fit and Nicola. Legends! #DownSyndromeBill @PositiveaboutDS
MPs in England will hear a bill later aiming to help people with Down Syndrome get better access to public services. #BBCBreakfast has heard from some of those who say the law needs to change. bbc.in/3p4PtVI
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CHANGE OF TIME - Friday, 26th NOVEMBER Meet: 1:30pm Abingdon Street #DownSyndromeBill eventbrite.co.uk/e/show-your…
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