EDS & Co, Rare Diseases, Patient & Disability Advocate, Wifey & Current Ms. Wheelchair Washington USA 2022 #PracticeSelfCareForYourHealthcare
Bellevue, WA
Joined May 2011
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You’re my hero, @jameelajamil thank you for your incredible advocacy-especially regarding EDS, Hypermobility, and Body-Shaming Toxic Diet Culture. You inspire me everyday! 🙏🏻❤️ Virtual extra gentle zebra hugs and thanks for reminding us to be & love ourselves as we are.
Happy Belated Puppy Day from Tompkins Families of Sequim & Bellevue, including our grown-up puppy, Russell Wilson. Thank you 4 ur ongoing support of Rare Disease legislation & 4 those with chronic illnesses & disabilities. Thank you Representative Kilmer! 🙏🏻💕
I’m honored 2 b amongst my fellow #WEGOHealthAwards finalists @ #HLTHVRTL. 💙Celebrate those elevating patient voices Thur. 10/15 @ 7pm ET @EDSNW #EDSHSD #PatientAdvocacy #WEGOHealthAwards #HLTHVRTL2020 #DysautonomiaAwarenessMonth🦓
Add an event reminder: bit.ly/34Ez5RH
Troy & Sarah in front of NORD ‘Show Us Your Stripes’ Poster at The Spy Museum in D.C. for Rare Disease Day February 29, 2020 via Whova event app whova.com/whova-event-app/
Troy and Sarah at The Rare Voice Awards December 2019 via Whova event app whova.com/whova-event-app/
Sarah meeting with Louise O’Rourke of Senator Maria Cantwell’s office for Rare Across America summer of 2019. via Whova event app whova.com/whova-event-app/
Our Black Lab Luna lying in the grass with a Red Harry Potter collar. She sticks out her pink tongue spotted with black dots. via Whova event app whova.com/whova-event-app/
My week on Twitter 🎉: 1 Mention, 3 Likes, 1 Reply. See yours with sumall.com/performancetweet?…
My week on Twitter 🎉: 6 Likes, 2 New Followers. See yours with sumall.com/performancetweet?…
My week on Twitter 🎉: 1 Mention, 3 Likes, 1 Reply. See yours with sumall.com/performancetweet?…
My week on Twitter 🎉: 2 Mentions, 1 Retweet, 3.67K Retweet Reach, 1 Reply. See yours with sumall.com/performancetweet?…
