EDS & Co, Rare Diseases, Patient & Disability Advocate, Wifey & Current Ms. Wheelchair Washington USA 2022 #PracticeSelfCareForYourHealthcare
Bellevue, WA
Joined May 2011
- Tweets5.5K
- Following4.5K
- Followers1.7K
- Likes15.2K
Sarah Tompkins 🦽❤️🦓 retweeted
Dear WA Senator Jeff Holy, how can we help move @WashingtonSRC bit.ly/3QIAugG to create a Washington Rare Disease Advisory Council? Representation matters. #RareDisease #advocacy
Sarah Tompkins 🦽❤️🦓 retweeted
Welcome @Upequity_Org and Rare Disease Innovations Institute rdii.org/ to the expanding @Rare_Ready genetic and rare disease coaltion. We believe Medicaid should cover telehealth visits with out-of-state providers. We’re all in this together. #RareDisease
Sarah Tompkins 🦽❤️🦓 retweeted
Are you coming to 2022 Patient Advocacy Summit? #GGSummit22
Can u name the most rare diseases in 30 seconds?
Watch Effie Parks try
Taylor Kane created the challenge and will host it for us at the Summit.@globalgenes @rarelikeher #careaboutrare #raredisease @OnceUponAGene
Sarah Tompkins 🦽❤️🦓 retweeted
Hearing Patients and Their Caregivers First Hand at the RARE Patient Advocacy Summit #HITsm #ptchat @GlobalGenes @MortonPR @BarbyIngle @rarelikeher #GGSummit22 healthcareittoday.com/2022/0…
Sarah Tompkins 🦽❤️🦓 retweeted
When was the last time you screwed up?
Crashed and burned?
Felt like a total imposter?
Tune in to hear mine 🫥🥴🫣
#RareDisease #CTNNB1 #PodcastForACause #PublicSpeaking
effieparks.com/podcast/effis…
Sarah Tompkins 🦽❤️🦓 retweeted
I’m just going to put this out there
If you haven’t got a pharmacist in your world, get one
People seriously underestimate the power of a damn good pharmacist. We can do jobs people only imagine possible. Seriously, if you think it, a pharmacist can probably do it
Sarah Tompkins 🦽❤️🦓 retweeted
It was an honor to speak to attendees at @GlobalGenes RARE Patient Advocacy Summit about beginning their rare disease advocacy journey. If you're interested in getting involved, visit rareadvocates.org or reach out to me at [email protected]! #RDLA #raredisease
Our panel of #RareDisease advocates talking about their #advocacy journey as parents, young adults and patients. @ramirezholmes, Ali SP and Laura Romano join @KatelynALaws
Sarah Tompkins 🦽❤️🦓 retweeted
You could find yourself in front of these cameras on the national stage of Ms. Wheelchair USA! To become a contestant email [email protected]. Applications are available now! #MWUSA #disabilitypageants #newseason #winthecrown #thedanefoundation #adifferentkindofcrown
Just posted a photo @ Bridle Trails, Bellevue instagram.com/p/Chc3ME7Jcgn/… – at Everett, WA
Sarah Tompkins 🦽❤️🦓 retweeted
Welcome to the MWUSA Winner’s Circle Sarah Tompkins! @DaneFoundation @MsWheelchairUSA #adifferentkindofcrown – at Cuyahoga Falls, OH
Sarah Tompkins 🦽❤️🦓 retweeted
Current People’s Choice standings. Vote for your favorite contestant at mswheelchairusa.org/mwusa/ #MWUSA #DisabilityPageant #MsWheelchairUSA #DisabilityTwitter #DisabilityPrideMonth
Sarah Tompkins 🦽❤️🦓 retweeted
Nothing makes me more happy than sharing my passion with my kids including my special boy. #adaptivesurfing for the win! #SYNGAP1 #inclusion
Sarah Tompkins 🦽❤️🦓 retweeted
"It is understanding what it is to be overlooked... because of the way you were born."
Arthur Hughes is the first disabled actor @TheRSC has cast in a lead role - he will be playing Richard III.
@JaneDodgeC4 reports from Stratford-upon-Avon.
channel4.com/news/disabled-a…
Sarah Tompkins 🦽❤️🦓 retweeted
The Filibuster host will be @qjusttheletter and panelists include @haziethompson, @vietnameseham69, @BrvHrt09, @KateMcWilli and possibly a few others.
Sarah Tompkins 🦽❤️🦓 retweeted
Man at bus stop seeing me, a wheelchair user:
“I don’t have time to wait for a wheelchair to get on.”
Wheelchair users know about waiting.The resistance to us riding buses kept them inaccessible for years. Your wait is minimal. Our wait for access persists.
Sarah Tompkins 🦽❤️🦓 retweeted
Don’t be misled.
Businesses know when they are excluding disabled people.
Inaccessibility is not an oversight.
It is ableism.
Sarah Tompkins 🦽❤️🦓 retweeted
Hey #medtwitter who are your vascular access heroes? You know the person you always call to start an IV, or always consult with the most complicated cases! Please nominate them for @ISaveThatLine award!
AVA's 2022 Call for 🏅 Awards closes on June 9th
Full details here: avainfo.org/page/awards
Help AVA recognize individuals within the specialty that have enhanced public and professional awareness, demonstrated scholarly excellence and advanced the specialty.
Sarah Tompkins 🦽❤️🦓 retweeted
Film Crew Sought For Cleveland, OH based docu-series - mailchi.mp/aeab31081034/film…