Global awareness, education, recognition, resources, and research for Visual Snow Syndrome 👁️🌨️🧠 #VisualSnowSyndrome
Los Angeles, CA
Joined January 2018
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💙 Sierra Domb, Founder Emeritus of the Visual Snow Initiative, was recently featured by CNBC Cures to share her journey with Visual Snow Syndrome (VSS).
🔗 Read more: visualsnowinitiative.org/res…
Many people with Visual Snow Syndrome (VSS) also experience migraine aura.
This video shows one way migraine aura and the constant static of visual snow can look together. ❄️📺
#VisualSnowSyndrome #Migraine #MigraineAura #VisualSnow #awareness #VSS
Some of VSI’s latest updates 💙
Swipe through six milestones in Visual Snow Syndrome awareness, research, and support 👉
🗓️ Visit the timeline page on our website to learn more about the history of VSS and what VSI has done throughout the years.
visualsnowinitiative.org/vss…
In this video, Dr. Sui Wong shares what led her to study mindfulness-based cognitive therapy for VSS. It also explains what her first study found and how the approach was adapted for visual symptoms.
youtu.be/0cz_1rJ3H_k
VSI and Oxford Mindfulness offer a free introductory module for VSS in the Oxford Mindfulness app. It gives people a way to explore the approach at their own pace.
Watch Dr. Wong explain the #research . 🧠
youtu.be/0cz_1rJ3H_k
Join us TODAY for our #VisualSnowSyndrome Support Group @ 2:00 PM (EST)! 💬
📅 Don’t forget to mark your calendar for future sessions:
Every first Wednesday of the month at 8:00 PM EST
Every third Tuesday of the month at 2:00 PM EST
This peer-moderated virtual group provides supportive face-to-face conversations, friendly and relatable connections, emotional encouragement, and a safe space to share experiences. (Note: This group is not for medical advice. Please follow the guidelines.)
👉 Join using the link in our bio or visit: ancan.org/visual-snow-syndro…
We hope to see you there! 🩵
Attention #VisualSnow community in 🇫🇷
The Visual Snow Initiative (VSI) has added its first physician in #France to the VSI Physician & Specialist Directory! 🌍🩺
This exciting milestone marks an important step in expanding access to knowledgeable care and diagnosis
for individuals living with #VisualSnowSyndrome (VSS) in France.
We are always accepting additions of doctors worldwide who are aware of VSS and able to provide proper diagnosis and care.
💡 If you’ve been diagnosed by a physician in your area who is knowledgeable about VSS but not yet listed in our directory, please email us at [email protected].
🔎 Explore the directory via the following link: visualsnowinitiative.org/doc…
Stay tuned for more updates!
How to test if you have #VisualSnowSyndrome
youtu.be/dl6h7TDaj9o?si=A8vC…
Check out more videos by Dr. Sui Wong on her YouTube channel
youtube.com/@DrSuiWong
Yes, people who are Blind, Deaf, DeafBlind, or Hard of Hearing can experience #VisualSnowSyndrome (VSS). 💙
🧠 VSS involves differences in how the brain processes visual and sensory information. Because visual snow is generated by the brain, reduced vision or
sensory experience. These symptoms can make everyday tasks more challenging, but current scientific evidence does not indicate that VSS causes blindness or deafness.
🤝 Inspired by a collaboration between VSI Founder Emeritus Sierra Domb and
ASL/English interpreter Tarra Grammenos, this article highlights why diverse experiences deserve recognition. VSS should not be assumed to be present or absent based only on someone’s vision or hearing ability.
🔗 Learn more:
visualsnowinitiative.org/res…
The Visual Snow Initiative’s Medical ID and Travel Card was created specifically for people living with #VisualSnowSyndrome . 🪪
The card includes:
👁️ A description of VSS
✨ Symptoms you may experience
🤝 Guidance on how others can help
📋 The ICD-11 code
personnel, family, or friends who may be unfamiliar with VSS.
The idea came from Founder Emeritus Sierra Domb’s experiences living with VSS and multiple invisible illnesses. 💙 Her goal was to make self-advocacy more accessible and help others communicate their needs when their
symptoms may not be immediately understood or accommodated.
Buy your card:
visualsnowinitiative.org/vis…
