Global awareness, education, recognition, resources, and research for Visual Snow Syndrome 👁️🌨️🧠 #VisualSnowSyndrome

Los Angeles, CA
Joined January 2018
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Many people with Visual Snow Syndrome (VSS) also experience migraine aura. This video shows one way migraine aura and the constant static of visual snow can look together. ❄️📺 #VisualSnowSyndrome #Migraine #MigraineAura #VisualSnow #awareness #VSS
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🗓️ Visit the timeline page on our website to learn more about the history of VSS and what VSI has done throughout the years. visualsnowinitiative.org/vss…
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Some of VSI’s latest updates 💙 Swipe through six milestones in Visual Snow Syndrome awareness, research, and support 👉
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VSI and Oxford Mindfulness offer a free introductory module for VSS in the Oxford Mindfulness app. It gives people a way to explore the approach at their own pace. Watch Dr. Wong explain the #research . 🧠 youtu.be/0cz_1rJ3H_k
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In this video, Dr. Sui Wong shares what led her to study mindfulness-based cognitive therapy for VSS. It also explains what her first study found and how the approach was adapted for visual symptoms. youtu.be/0cz_1rJ3H_k
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This peer-moderated virtual group provides supportive face-to-face conversations, friendly and relatable connections, emotional encouragement, and a safe space to share experiences. (Note: This group is not for medical advice. Please follow the guidelines.)
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Join us TODAY for our #VisualSnowSyndrome Support Group @ 2:00 PM (EST)! 💬 📅 Don’t forget to mark your calendar for future sessions: Every first Wednesday of the month at 8:00 PM EST Every third Tuesday of the month at 2:00 PM EST
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💡 If you’ve been diagnosed by a physician in your area who is knowledgeable about VSS but not yet listed in our directory, please email us at [email protected]. 🔎 Explore the directory via the following link: visualsnowinitiative.org/doc… Stay tuned for more updates!
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for individuals living with #VisualSnowSyndrome (VSS) in France. We are always accepting additions of doctors worldwide who are aware of VSS and able to provide proper diagnosis and care.
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Attention #VisualSnow community in 🇫🇷 The Visual Snow Initiative (VSI) has added its first physician in #France to the VSI Physician & Specialist Directory! 🌍🩺 This exciting milestone marks an important step in expanding access to knowledgeable care and diagnosis
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How to test if you have #VisualSnowSyndrome youtu.be/dl6h7TDaj9o?si=A8vC… Check out more videos by Dr. Sui Wong on her YouTube channel youtube.com/@DrSuiWong
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ASL/English interpreter Tarra Grammenos, this article highlights why diverse experiences deserve recognition. VSS should not be assumed to be present or absent based only on someone’s vision or hearing ability. 🔗 Learn more: visualsnowinitiative.org/res…
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sensory experience. These symptoms can make everyday tasks more challenging, but current scientific evidence does not indicate that VSS causes blindness or deafness. 🤝 Inspired by a collaboration between VSI Founder Emeritus Sierra Domb and
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whether someone had visual experience earlier in life may influence how they experience or describe visual snow, afterimages, or light sensitivity. Research remains limited, particularly for people who have been completely blind since birth. VSS adds disturbances to a person’s
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hearing does not automatically prevent someone from experiencing it. Hearing is not required to experience visual snow. 👁️ Blindness includes different degrees and types of vision loss, so experiences can vary. The amount of remaining vision, the cause of vision loss, and
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Yes, people who are Blind, Deaf, DeafBlind, or Hard of Hearing can experience #VisualSnowSyndrome (VSS). 💙 🧠 VSS involves differences in how the brain processes visual and sensory information. Because visual snow is generated by the brain, reduced vision or
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personnel, family, or friends who may be unfamiliar with VSS. The idea came from Founder Emeritus Sierra Domb’s experiences living with VSS and multiple invisible illnesses. 💙 Her goal was to make self-advocacy more accessible and help others communicate their needs when their
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✍️ Space to write in additional symptoms 📎 A slot to attach a lanyard for easy carrying Whether you’re traveling ✈️, seeking medical care 🏥, or experiencing symptoms in a public setting, you can show the card to medical professionals, transportation staff, emergency
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