
💻PC setups & gaming tech 🎮Honest reviews & desk inspiration 📩Collabs: [email protected] 🖱️ WALLHACK CODE: SOPHSETUP10
Joined December 2019
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As someone who’s suffers from pots since I was 19 and went through several years of tests, it’s so important to raise awareness for pots and how it affects people daily. Just because someone looks okay doesn’t mean they are
1/3 🌟 #PoTSAwarenessDay 🌟 potsuk.org
Please view our new ✨What is PoTS✨ leaflet in the image thread below.
To download the leaflet: potsuk.org/wp-content/upload…
Please also watch our popular 4 minute 'What is PoTS' video in the thread below and via this link: youtube.com/watch?v=XoKmJA-o…
GP guide: potsuk.org/wp-content/upload…
Share to raise awareness 💜
#MedTwitter #MECFS #EDS #TeamGP #MCAS #PoTS #Disability #LongCOVID #Dysautonomia #InvisibleIllness @DrSdeG @LC_Physio
1/5 Happy 7th 🌟#PoTSAwarenessDay🌟
Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition.
#PoTS is an abnormality of the autonomic nervous system, which controls all bodily functions that we don’t have to think about.
Individuals experience orthostatic intolerance, which means that they mostly experience symptoms when in an upright position.
The majority of people with PoTS also have other related medical conditions such as hypermobile Ehlers-Danlos Syndrome, allergies, Long Covid and ME/CFS- all of which can make symptoms worse.
If you are new here please take the time to view the image thread below to learn some basics about PoTS:
🟣 Symptoms
🟣 Tests/Investigations/Diagnosis
🟣 Treatment- lifestyle changes & medication
View our website to learn more about symptoms: potsuk.org/about-pots/sympto…
#MedTwitter #TeamGP #ChronicIllness #LongCovid #InvisibleIllness #MECFS #EDS #MCAS @DrSdeG @elisaperego78 @DrSarahJarvis @mermhart @cpgale3 @LongCovidAdvoc @LC_Physio @MEAssociation
Don’t forget to checkout my other socials:
Instagram- instagram.com/soph_setup?exl…
TikTok- tiktok.com/@soph_setup?_r=1&…
YouTube - youtube.com/@craftingsetups?…
CAN YOU HELP US CAPTURE THE PURPLE GLOW THIS SUNDAY? 💜
This Sunday, 25th October, buildings and landmarks across the UK will light up purple for PoTS Awareness Day, and we need your help!
Do you live near any of these locations?
📍Bradford City Hall
📍Burnley Clock Tower
📍Doncaster Mansion House
📍Nottingham Council House
📍Any buildings in the Perth and Kinross Council area
📍Any buildings lighting up on the Isle of Wight
📍Twin Sails Bridge
📍Whitehall Hartford
Local media outlets are keen to receive photographs of these landmarks lit up purple, helping us raise awareness of #PoTS and show the impact of our awareness campaign.
Can you help? If you're nearby, we'd love you to take a photo of the building or landmark lit up purple on Sunday and share it with us!
Every photo helps us spread the word and raise awareness of PoTS in local communities.
📩 Please send your photos to [email protected].
Thank you for helping us make PoTS visible this Awareness Day!
#PoTSAwarenessMonth #PoTSAwarenessDay #LivingWithPoTS #LightUpForPoTS
Thank you so much to @AGONbyAOC for sending this out! Can’t wait to get it set up and play some CS2 on it!
Thank you, Dr Amir Khan, for raising awareness this #InvisibleDisabilitiesAwarenessWeek!
He speaks of what he's learnt from his patients and the daily reality of having invisible symptoms 💜
We know this will resonate with many people living with #PoTS and other invisible illnesses.
Please share to help raise awareness of how PoTS can affect everyday life, often in ways that others can’t see.
#PoTSAwarenessMonth #InvisibleDisabilitiesAwareness #InvisibleIllness
instagram.com/reel/DewBqgBoc…
Always looking to connect with new people and products! You can reach me at [email protected] 🩵🤍
Everytime I film unboxing it reminds me I need a bigger and deeper desk 😂 always having to remove my keyboard etc to film
Join us *tomorrow* for our first PoTS UK @Twitch stream-a-thon! 🎮
11 streamers, a variety of content, all fundraising to support @ukpots!
All have a connection to #PoTS, whether it's a personal diagnosis or supporting a loved one.
Join in the fun and support where you can 💜
justgiving.com/campaign/pots…
Stream schedule below, all on twitch.tv 👇
#Twitch #Streamers #PoTSAwarenessMonth
I bet this is gonna be elite!
Introducing Kunai.
Original shape.
In-house firmware.
Custom PixArt 3955 sensor by @CrdrakoGears.


















