A charity passionate about supporting those with Postural Tachycardia Syndrome; raising funds to provide information, education, research, awareness & advocacy.
UK
Joined May 2014
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1/5 Happy 7th 🌟#PoTSAwarenessDay🌟
Postural Tachycardia Syndrome (PoTS) can be a life altering and debilitating health condition.
#PoTS is an abnormality of the autonomic nervous system, which controls all bodily functions that we don’t have to think about.
Individuals experience orthostatic intolerance, which means that they mostly experience symptoms when in an upright position.
The majority of people with PoTS also have other related medical conditions such as hypermobile Ehlers-Danlos Syndrome, allergies, Long Covid and ME/CFS- all of which can make symptoms worse.
If you are new here please take the time to view the image thread below to learn some basics about PoTS:
🟣 Symptoms
🟣 Tests/Investigations/Diagnosis
🟣 Treatment- lifestyle changes & medication
View our website to learn more about symptoms: potsuk.org/about-pots/sympto…
#MedTwitter #TeamGP #ChronicIllness #LongCovid #InvisibleIllness #MECFS #EDS #MCAS @DrSdeG @elisaperego78 @DrSarahJarvis @mermhart @cpgale3 @LongCovidAdvoc @LC_Physio @MEAssociation
PoTS UK retweeted
💙 El Palacio de la #Aljafería se ilumina en el Día Internacional del Síndrome de
Taquicardia Postural #PoTS para visibilizar la disautonomía, dar voz a miles de personas que viven con una condición poco conocida y avanzar en el diagnóstico, tratamiento e investigación.
Thank you to @O2GuildhallS Southampton for lighting up tonight, raising awareness of #PoTS on this #PoTSAwarenessDay! 🫶💜
Please learn more here: potsuk.org
#LightUpForPoTS
We're shining a spotlight on those who are living with PoTS by lighting up our town centre landmarks this evening.
Those with PoTS can be affected by a number of symptons including heart palpitations, fainting, brain fog and lots more.
Find out more 👇
potsuk.org/about-us/pots-awa…
PoTS UK retweeted
We're shining a spotlight on those who are living with PoTS by lighting up our town centre landmarks this evening.
Those with PoTS can be affected by a number of symptons including heart palpitations, fainting, brain fog and lots more.
Find out more 👇
potsuk.org/about-us/pots-awa…
Thank you to @ParadiseBham for lighting up in purple this evening for #PoTSAwarenessDay 🫶💜
#PoTS potsuk.org
This PoTS Awareness Day, we’re lighting One Centenary Way purple to help shine a light on an often invisible condition.
Postural Tachycardia Syndrome (PoTS) affects the autonomic nervous system and can make something as simple as standing up cause debilitating symptoms.
By turning purple, we’re helping to raise awareness, improve understanding and show our support for everyone living with PoTS.
#PoTSAwarenessDay #PoTSAwareness #LightUpPurple #PoTS #ManagedByFederatedHermes
PoTS UK retweeted
Today is PoTS Awareness Day – a day dedicated to raising awareness about postural orthostatic tachycardia syndrome (PoTS), an under-recognised and debilitating condition affecting many people with ME/CFS.
Read more: tinyurl.com/pots-awareness-d…
PoTS UK retweeted
I'm raising awareness of #PoTS.
Having PoTS can feel lonely, frustrating & exhausting. It can be difficult to manage daily symptoms such as dizziness, nausea and fatigue.
My experiences trying access heath care and education services led me into politics.
#PoTSAwarenessDay
PoTS UK retweeted
Understanding #POTS starts with trusted information. CardioSmart’s POTS hub offers patient-friendly information on symptoms, diagnosis, treatment, questions to ask the care team and self-advocacy. Check out the hub here: bit.ly/4y8Bhgb
#CardioSmart #POTSAwarenessDay
PoTS UK retweeted
🌀 Dizziness
💤 Extreme fatigue
🌫️ Brain fog
Standing up can feel like a marathon
#POTS is a complex autonomic disorder, not just lightheadedness
It often overlaps with #Fibromyalgia
Let’s make the invisible visible
Believe patients
#POTSAwarenessDay #Dysautonomia
PoTS UK retweeted
Today is PoTS Awareness Day
Many people with Long Covid have PoTS, with studies showing that anywhere between 11% to over 50% of people with Long Covid also meet the diagnostic criteria for PoTS.
To find out more about PoTS, head to potsuk.org/
#LongCovid #PoTS
PoTS UK retweeted
Discover the link between #POTS and #EoE 👉 eosnetwork.org/news/dysauton…
For years, researchers hypothesised that #dysautonomia may commonly co-occur with #EosinophilicOesophagitis (EoE), and new research is helping us to understand the connection between them.
#POTSAwarenessDay
PoTS UK retweeted
📣 Researchers have identified a distinct subtype of #EosinophilicOesophagitis, characterised by #dysautonomia, #POTs, and #hypermobility.
Learn more about this subtype and what its discovery means for clinical practice 👉eosnetwork.org/dysautonomia-…
PoTS UK retweeted
Today is PoTS Awareness Day. This can be a debilitating condition impacting the autonomic nervous system, often missed by healthcare professionals. Please see link for details: potsuk.org/about-pots/what-i… #PoTS
PoTS UK retweeted
💙 Did you know today is POTS Awareness Day?
POTS is a form of dysautonomia that affects the autonomic nervous system. It can cause debilitating fatigue, dizziness, brain fog, headaches, and a racing heart. You don’t have to faint to suffer. #POTSAwareness #POTS #dysautonomia
PoTS UK retweeted
Al 7 jaar kom ik op voor POTS, een verstoorde bloedcirculatie met ernstige multisystemische gevolgen. Meestal vanuit een liggende positie. Omdat staan en rechtop zitten mijn symptomen verergert.
#potsawarenessday
DitisPOTS.nl
PoTS UK retweeted
October is Dysautonomia Awareness Month and today is POTS awareness day. To those who have it, I want you to remember this, don’t despair.
You are awesome persistent, inspiring and you always show us that anything is possible.
#DysautonomiaAwarenessMonth
#POTSawarenessday
🌟#PoTSAwarenessDay🌟
PoTS isn’t easy, but there can be positives too.
Four members of our #PoTS community share some of the unexpected positives they’ve found through their experiences of living with PoTS.
From new perspectives and connections, to discovering strengths they didn’t know they had...hear what they have to say.
#PoTSPositives #PoTSAwarenessMonth
Could you pledge to donate just £2.50 a month to PoTS UK this #PoTSAwarenessDay? 🫶
That’s less than the price of a coffee, and your regular support could make a real difference to people living with #PoTS!
Your monthly donation would help PoTS UK to continue raising awareness, share trusted information, connect people with others who understand and campaign for better care.
Imagine what we could achieve if more people joined our community of supporters!
Together, we can help more people understand PoTS, ensure people living with the condition feel less alone, and keep pushing for better recognition and support.
This PoTS Awareness Day, turn a small monthly donation into lasting support.
💜 Set up your monthly donation today: potsuk.org/donate/
potsuk.org
#Charity #Donate #Donations #JustGiving #Disability #ChronicIllness #HelpingOthers
PoTS UK retweeted
As someone who’s suffers from pots since I was 19 and went through several years of tests, it’s so important to raise awareness for pots and how it affects people daily. Just because someone looks okay doesn’t mean they are
1/3 🌟 #PoTSAwarenessDay 🌟 potsuk.org
Please view our new ✨What is PoTS✨ leaflet in the image thread below.
To download the leaflet: potsuk.org/wp-content/upload…
Please also watch our popular 4 minute 'What is PoTS' video in the thread below and via this link: youtube.com/watch?v=XoKmJA-o…
GP guide: potsuk.org/wp-content/upload…
Share to raise awareness 💜
#MedTwitter #MECFS #EDS #TeamGP #MCAS #PoTS #Disability #LongCOVID #Dysautonomia #InvisibleIllness @DrSdeG @LC_Physio
