waysidewhelp (@waysidewhelp) header
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Former BSL-2/3 Preclinical Researcher, now surviving #LONGCOVID, #MCAS, #EDS, & 20 yrs of #MECFS. Artist, Bio Major, & Dino/Bird Nerd. N95 Respirator Fanboy!😷

Get FREE N95’s in the US 👇
Joined May 2023
Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)Photo by waysidewhelp (@waysidewhelp)
Bonus if you use eye protection too. Sunglasses/eyeglasses w/ side shields are my fav. Pro-tip: Put some skin-safe silicone tape inside respie nosebridge area to create a foggless seal for glasses :)
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Advice: Don ur well-fitting respie b4 you leave ur abode. Keep it on when in shared public air unless emergency doffing is required (to prevent dehydration, hyperthermia, to have CPR performed on you etc) Doff ur respie after you get back inside abode. Wash ur hands. 👍
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Do you all want A Canticle for Liebowitz? Bc this is how you get A Canticle for Liebowitz
Increasingly convinced there was a prelapsarian Tower of Babel moment where everyone used the same plug, but people angered the god of electricity and now we have this
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Checking in w/ all my LC peeps who I’ve missed while MIA. ❤️ How are you feeling today? Be as honest as you want. 🙏 The good, the bad, all of it. Anything you want to share/vent/put out there. Speak your mind in the replies. 👇👇👇
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Replying to @QueerInBC
No accountability in ANY specialty from my experience. Pts get tossed around like a hot potato. Neurologist saw these slices and told me to go to an Endocrinologist. Dude, you are a brain doctor, these calcifications are in my brain, & you got nothin’?
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It seems radiologists have no accountability. If it wasn’t covered in their training, it doesn’t exist. I think someone said they make up to CA$400k/yr in Canada & don’t actually see patients.
Video scrolling thru the sagittal slices so ya’ll can see the calcifications inside the top of my skull. Bonus: Radiologist made zero comments on this at all in the read for this CT study. I did not have these a year ago. How could you miss this?
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Glad they were able to! 🙏🙏🙏 I personally blame insurance companies & corporate hospital systems. They disincentivize Dr’s from ordering the needed tests/treatments & try to maximize the Pt load Dr’s see every day in clinic, reducing the time spent per Pt to increase profit
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Most Dr’s won’t have time in their workflow to think critically about symptoms & tests or to even read the updated guidelines on Long Covid or any other emerging health guidance as our global immune landscape changes. Pt health outcomes suffer, yet profit increases.
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🧵Thread on how I modify KN95 earloop respies that do not pass fit test on me into upgraded headloop KN95 respirators that pass fit test on me very well. At the end I try using a sewing machine/gaffers tape/3M silicone tape version! 😷
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Get elected? Liquidate ur investments while serving. You are a public servant.
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Also: Elected Politicians at any level should not only be required to disclose their own & close relatives CONFLICTS OF INTEREST - They (& relatives) should also be barred from any stock market or similar investments while in office to prevent policy decision making bias.
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So tired of politicians running on platforms of promises (lies) they never intend to fulfill. Or saying they’ll do something a specific way but once elected they do the EXACT OPPOSITE. Hypocritical actions deserve repercussions.
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Politicians are not celebrities & would be wise to remember who they work for & why they were elected. We need to legislatively establish checks, balances, & repercussions for politicians who fall short of promises they make in election cycles during their time in office.
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Health insurance companies are middle-men scammers & should be abolished in the US - they lead to preventable poor Pt outcomes more often than not (up to mortality) from denial of care. Lobbying is legalized bribery & should likewise be abolished - it’s why no change has occured
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If they don’t test u, they can’t find anything to diagnose & treat you for. Saves insurance companies from having to pay out their “profit” for any treatments, therapies, surgeries a Pt NEEDS. Same idea behind prior auth & denials of the same.
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It’s happening to mostly everyone w/ LC. In the US - doctors get paid by insurance & insurance companies wont re-up payment contracts for doctors who don’t follow what saves insurance companies the most money - less tests. So unless u got $$$ for self pay, ur at their mercy.
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Gonna take 1.5 months of 500mg PO Mag Citrate a day to see a diff most likely, but nice to know it’s reversible. Sad we have no way to measure/monitor non-serum lvls of Mg in the living body. Could biopsy, fix cells, then mass spec?
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Replying to @dysautonomian
Ok, broke my fast & took 500mg Mag Citrate w/ a small meal (two 250mg gelcaps). They don’t test my serum Mg often but I have been low b4. I think you are accurate in thinking this is the likely pathology - calcification is systemic - heart, brain, spine, & finger joints.
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Sorry I’ve been MIA. Severe 24/7 headache upper backside of head, stiff neck, vertigo/nausea, bad balance walking, xtreme light/sound sensitivity, numbness on all L side of body. New calcifications inside skull on CT = normal & then FND diagnosis by neuro. What can be done?
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Has anyone had any luck getting a 2nd opinion after a FND diagnosis? Or any workup at all after FND diagnosis? Very concerned for automatic dismissal & being mistakenly labeled as “malingering” or “fictitious” by MD’s.
Sorry I’ve been MIA. Severe 24/7 headache upper backside of head, stiff neck, vertigo/nausea, bad balance walking, xtreme light/sound sensitivity, numbness on all L side of body. New calcifications inside skull on CT = normal & then FND diagnosis by neuro. What can be done?
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