The UK charity for all affected by Addison’s disease & adrenal insufficiency. 🗓 29 May: #AddisonsDiseaseDay 🎉#TeamAddisons 📲Learn more: #AddisonsQA

UK & Ireland
Joined February 2015
Addison's Disease Self-Help Group (ADSHG) retweeted
Please retweet far and wide. It's not only a charity near to my heart it's also a life saver for me!
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKOct 13
We’re taking our campaign for safer adrenal crisis care to Parliament📣 We need you! MPs are more likely to attend if constituents ask. Will you invite yours? ✏️ Send our template letter to your MP➡️ loom.ly/-X822dA In adrenal crisis, every second counts. Thank you.
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Addison's Disease Self-Help Group (ADSHG) retweeted
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKOct 19
People with adrenal insufficiency deserve safer adrenal crisis care. Adrenal crisis is a life-threatening emergency that needs a time-critical injection of hydrocortisone. Other life-threatening conditions have auto-injectors or pre-filled syringes. Adrenal crisis doesn’t. (1/3)
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Addison's Disease Self-Help Group (ADSHG) retweeted
The louder our voice in Westminster the more likely we are to succeed. All who can, please invite your MP. 🙏🏻
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Addison's Disease Self-Help Group (ADSHG) retweeted
💯 I've had crises where I would have been done if it not for having someone to administer as I was utterly unable.
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Addison's Disease Self-Help Group (ADSHG) retweeted
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKOct 14
Replying to @GiuliaBould
Thank you @GiuliaBould! Here's how people can support the campaign for Safer Adrenal Crisis Care. 🏛️Invite MPs to our Parliamentary drop-in 🙋Volunteer skills or expertise to help grow our campaign. ✨Donate or fundraise so we can do more! Find out more➡️addisonsdisease.org.uk/advoc…
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Addison's Disease Self-Help Group (ADSHG) retweeted
Replying to @Bill_Esterson
@Bill_Esterson @andyburnham @YvetteCooperMP I have had Addisons disease for over 28 years! Please attend the drop in about safer adrenal crisis care! This will save lives! #addisonsdisease #adrenalcrisis
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKOct 13
We’re taking our campaign for safer adrenal crisis care to Parliament📣 We need you! MPs are more likely to attend if constituents ask. Will you invite yours? ✏️ Send our template letter to your MP➡️ loom.ly/-X822dA In adrenal crisis, every second counts. Thank you.
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Addison's Disease Self-Help Group (ADSHG) retweeted
"1 in 200 adrenal crises is fatal, yet patients face a 15-step injection process to save their own life."
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKSep 17
On #WorldPatientSafetyDay our campaign for safer adrenal crisis care is gaining momentum in Parliament. @DaveR_Lichfield MP writes in @ParlMagazine: "1 in 200 adrenal crises is fatal, yet patients face a 15-step injection process to save their own life." parliamentnews.co.uk/poor-an…
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Addison's Disease Self-Help Group (ADSHG) retweeted
10 years ago today I was in resus & diagnosed with incurable, life-threatening Addison's Disease + 4 further resus trips I thought I'd be unable to fulfil my ambitions To anyone in that place, keep going. Magic happens when you back yourself. I hope I have more magic to come 💫
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Addison's Disease Self-Help Group (ADSHG) retweeted
We're pleased to promote the forthcoming, free #adrenalinsufficiency information & training session hosted by @AddisonsUK - which is available for ALL #paramedics and clinical #ambulance personnel. Register for the 9 Sept session at addisonsdisease.org.uk/adshg…
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Addison's Disease Self-Help Group (ADSHG) retweeted
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKMay 29
On our #AddisonsDiseaseDay blog, meet Lottie & Emily. Both live with Addison's disease & use their personal experiences to turn awareness into action. Lottie as a paramedic, & Emily as a content creator. Read their stories ➡️ loom.ly/Fl2cSE4 (4/9)
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Addison's Disease Self-Help Group (ADSHG) retweeted
And who can resist having a photo with a blood tube almost as big as me 😬
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKJun 22
Replying to @AddisonsUK
What made this #DifferenceInADay partnership extra special is @BDandCo manufacture the needles & syringes used in our emergency hydrocortisone injection kits 💉 Here's their giant model from the BD Innovation Room! Thank you BD & @taprootfound for your time & expertise. 2/2
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Addison's Disease Self-Help Group (ADSHG) retweeted
Never thought I would be be able to say I did a marathon! 🤣However so much energy and passion from @BDandCo and @AddisonsUK went into this great day formulating how we can improve emergency care for people with #adrenalinsufficiency Watch this space!
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKJun 22
Our small but mighty charity spent the day with brilliant volunteers from @BDandCo for their #DifferenceInADay Marathon. With our team BD brought their expertise to one of our biggest challenges: reducing delays in recognising & treating adrenal crisis in emergency settings. 1/2
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Addison's Disease Self-Help Group (ADSHG) retweeted
. @AACE_org is supporting further excellent, free #adrenalinsufficiency information & training sessions hosted by @AddisonsUK - available for ALL #paramedics & clinical #ambulance personnel. Register for the next one (23 June) at addisonsdisease.org.uk/Event… @ParamedicsUK #JRCALC
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Addison's Disease Self-Help Group (ADSHG) retweeted
I am one of just 8000 people with this rare, incurable & life-threatening condition. Big hello to everyone else in #Addisons club 🤘🏻 I hope you are all well and living your best life ❤️ I will be retweeting important info today from all in our community
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKMay 29
It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉 This year our theme is ‘Turn Awareness into Action’ ⤵️ loom.ly/Fl2cSE4 (1/9)
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Addison's Disease Self-Help Group (ADSHG) retweeted
📅 29th May is Addison’s Disease Day In late March I was diagnosed with primary adrenal insufficiency (aka Addison's). Since then I've been learning to live with this condition. Fortunately, so far so good, as my medication is working well and I feel much better than previously.
Addison's Disease Self-Help Group (ADSHG)@AddisonsUKMay 29
It’s #AddisonsDiseaseDay - a day for everyone who is affected by Addison’s disease & adrenal insufficiency to join together to raise awareness & celebrate this incredible community 🎉 This year our theme is ‘Turn Awareness into Action’ ⤵️ loom.ly/Fl2cSE4 (1/9)
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Addison's Disease Self-Help Group (ADSHG) retweeted
💜Today I'll post a bit more about living with Addison's Disease 🚨It's very rare, it's incurable & it can be life-threatening ⚽I've 2 sides to my life. The one where I'm loving life reporting on footy 🚑The other is being kept alive artificially every day #AddisonsDiseaseDay
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Addison's Disease Self-Help Group (ADSHG) retweeted
. @AACE_org is supporting further excellent, free #adrenalinsufficiency information & training sessions hosted by @AddisonsUK - available for ALL #paramedics & clinical #ambulance personnel. Register for the next one (2 April) at addisonsdisease.org.uk/adshg… @ParamedicsUK #JRCALC
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Addison's Disease Self-Help Group (ADSHG) retweeted
**North East England** Do you have Addisons Disease or Adrenal Insufficiency? Book onto the Addisons Disease Injection Training and Sick Day Rules Refresher, link below addisonsdisease.org.uk/Event… @AddisonsUK @NorthumbriaNHS
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Addison's Disease Self-Help Group (ADSHG) retweeted
. @AACE_org is supporting further excellent, free #adrenalinsufficiency information and training sessions hosted by @AddisonsUK - available for all #paramedics and clinical #ambulance personnel. Register for the next one (Jan 26) at addisonsdisease.org.uk/Event… @ParamedicsUK #JRCALC
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