Transforming exclusion expertise into collective intelligence, policy change and new ventures. 💛 Community-led 🧬 Universal 🍥 Integrative ⚖️ Justice-first
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Joined February 2024
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1/ Community-owned AND Justice-first.
There’s a lot of discussion around how to design and build for chronic illness/ post viral communities in tech and innovation right now, so we thought it was a good time to set out our own position on all of it…
Lab Of Lived Experience (Lab OLE) retweeted
Beyond time for a UK national inquiry into the unbelievable levels of harm and neglect this patient population has had inflicted on them by *ALL* our systems.
Not just health.
Thank you George.
theguardian.com/commentisfre…
Lab Of Lived Experience (Lab OLE) retweeted
Submit any questions in advance. to [email protected]
Lab Of Lived Experience (Lab OLE) retweeted
To attend the online event:
🌟 Join the covidlonghaulers FB group: facebook.com/covid19longhaul…
🌟Also will be Livestreamed on YouTube : youtube.com/@covidlonghauler…
Lab Of Lived Experience (Lab OLE) retweeted
Next Sunday I’ll be sharing my strategic design approach and a new tool that can help communities visualise their complex health journey as systems.
Join us for the townhall with the Long Covid Longhaulers X @pubhealthaction next Sunday 19th : 2pm ET/ 7pm GMT
Lab Of Lived Experience (Lab OLE) retweeted
Our health system can’t get us the systemic change we need on its own.
But business and finance speak a different language and require a different approach entirely.
So we are now applying the climate collapse projected for the planet…to humans.
#biosystems
UN campaign progress update :
⚡️Another global CEO at the centre of climate health + economic change now gets what is happening to our pop health for the first time and is mobilising his influential policy/ design networks for us.
#protecthumanbiosystems messaging is working!
Lab Of Lived Experience (Lab OLE) retweeted
The letter is still open to sign at: protecthumanbiosystems.world
And
Follow
@laboflivedexp
to learn more about the community-owned innovation system we are also building to centre our expertise across all of it
Lab Of Lived Experience (Lab OLE) retweeted
UN campaign progress update :
⚡️Another global CEO at the centre of climate health + economic change now gets what is happening to our pop health for the first time and is mobilising his influential policy/ design networks for us.
#protecthumanbiosystems messaging is working!
Congratulations @LongCovidAdvoc on your carefully planned activation and effort to change to hearts and minds @rcpsych🌟🌟 #bioreality #HearOurVoices
💙Long Covid Advocacy in Liverpool on an outreach mission at the International Congress of The Royal College of Psychiatrists. #RCPsychIC
As always, our aim was to engage politely and openly with those present. It was a resounding success... 👇️ 🧵
ALT A photograph taken outdoors showing a hand holding a printed pamphlet in the foreground, with a large digital sign and a modern building in the background. The blurred pamphlet in the lower frame displays the heading "Open Letter" in a bold serif font, accompanied by the text "58 orgs 1200+ signed" and "#HearOurVoices". In the center background stands a tall, purple digital monolith sign under the branding "LIVERPOOL EXPERIENCE CAMPUS". The screen displays a colorful, abstract circular mosaic logo above the text "ROYAL COLLEGE OF PSYCHIATRISTS International Congress". Behind the sign is the glass facade of a modern convention centre reflecting the blue sky and nearby buildings, with an entrance on the right where people are walking through.
It’s more than time for the new paragdigm of #bioreality
Please sign and share and let’s get this open letter to the Royal College of Psychiatry to over 1K 👇👇
5️⃣days to go and our total today is 945 signatures! We're nearly at 1000.
⚡AIM: Remove Garner, Chalder & Carson from influencing the next generation of psychiatrists with harmful views for patients.
Sign up 🖇️✍️👇
tinyurl.com/yzk9m7et
Lab Of Lived Experience (Lab OLE) retweeted
I love that Anil has found a way to “*dance* despite the horrific states his body is forcing him to endure.
In awe of the resilience + creativity of our communities and this really feels like a sea change…
TW; #severeME owning the language of “living death”.
V powerful 🔥
‼️ BURIED ALIVE WITH M.E.‼️
For ME Awareness Month I made a severe ME body‑bag “dance” film about death within the ME community.
youtu.be/XhrAhGkrGuQ?is=-znW…
I also joined the online expo ME Kills by A Quiet Storm, which goes live on May 12th,
1/
#pwme #myalgicE #millionsmissing
Thank you @catsocialintel !
Our #protecthumanbiosystems UN campaign is out in the world! 🚀🚀🚀
No idea how I’ve built a global cross-sector coalition in a month for the 2nd time in a decade, but let’s see where this goes…
Lab Of Lived Experience (Lab OLE) retweeted
💚 1/ Today we asked the United Nations to protect people like we protect the environment.
Our #protecthumanbiosystems submission:
🌍 A coalition of 50+ signatories across 10+ countries, built in just 2 weeks for #science #systems #business #finance #charities #communities..
1/ Yesterday on #Longcovidawarenessday we launched our UN campaign to protect people like we protect the environment, which forces business + finance to act.
But business doesn’t speak health, so we need to talk to them differently.
🙏Take 2 quick polls to help us translate >>
Polls have closed now…but we have recreated them here on our website and you’ll be the first to use them before we officially launch them v soon!
laboflivedexperience.com/pol…
🙏
LI post by Geri Stengel, CEO @Ventureneer
Here’s how the investment community are also mobilising their networks on LI right now to invest in our unmet needs
#protecthumanbiosystems
👇
We’re now at 9 countries
Almost ready for our first UN deadline submission on Tuesday!
Add your name at protecthumanbiosystems.world
#protecthumanbiosystems
@laboflivedexp
1/ Welcome to the coalition, @TinaWoods , CEO + Founder of @Business4health , Elizabeth Bachrad , Head of Strategy.
B4H has deep expertise in new #exposome science, open data, population frameworks + ecosystem building…all areas our #bioscience now needs to integrate into.
3/ We thank them for being a founding signatory to the call for human biosystems protection in international law.
We have 5 days until our first submission deadline.
🌟Please take 2 mins to add your name and/ or ask a business leader you know >>
protecthumanbiosystems.world
Welcome to the coalition, @ShareAction and Sheila Kyobutungi, Head of Health!
A world where the #financial system serves the planet and its people must also protect the citizens and workers within it.
Responsible investment recognises the need to #ProtectHumanBiosystems
