For pw/caring4 long haulers: ME/CFS/FMS; Orthostatic Intolerance, POTS; Long Covid; Chronic Lyme. VDR immunopathy. MTHFR+. MCAS. By @NovaSupport Elly Brosius.
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ALT Urgent call to keep ME/CFS and Long Covid included in CDC's 2028 health survey, with a public comment deadline of October 19.
ALT Solve M.E. action alert on a deep teal background. Headline: Take action by Friday. Text: NIAID has proposed eliminating its Division of Clinical Research, the infrastructure behind clinical trials, on a five-day comment window. Comment by Sept 18.
ALT A purple and blue graphic depicting bubbles with white text. In the upper righthand corner, the Renegade Research logo is depicted. Graphic reads: "Patients to Researchers: Lived Experience Research Roundtable" on Friday, August 14, 2026 at 1 pm ET US. Join us for a free virtual discussion where ME/CFS and Long Covid patients will share experiences to help researcher projects and trials. Register: tinyurl.com/renres-08-14-2026. A QR code with a link for the event is depicted in the lower lefthand corner. The Renegade Research website link, Renegade-Research.org, is depicted in the lower righthand corner.
ALT Single glowing candle flame with blurred warm lights in background, honoring those lost on Severe ME Day, August 8.
ALT Your eyes are not remotely aligned
ALT The US has 5 regional COVlD outbreaks and 4 isolated outbreaks. The regional outbreaks include much of Alaska, California and western Nevada, much of Texas (central Texas sites have been shut off), the region from Kentucky through southern Illinois, and much of southern Florida. Isolated outbreaks include Franklin County in Washington, Bannock County in Idaho, Floyd County in Georgia, and Jasper County in South Carolina. Levels are rising across much of the US but later and slower than typical.
ALT Eye tracking data for circles, pre exertion, score 81.
ALT Eye tracking data for circles, day after exertion in hyper state, score 73.
ALT Eye tracking data for circles, post exertion 2nd day in PEM, score 28.
ALT An orange graphic depicting two men, Dr. Avram Gold and Dr. Joe Borelli. Renegade Research logo depicted in upper right hand corner. A QR code is depicted in the upper left hand corner with the word "Register" next to this link: tinyurl.com/renres-07-31-2026. White text reads: Clinician's Roundtable. Part 2: Sleep Dysfunction, Breathing Mechanics and Fatigue. Friday, July 31, 2026. 12 pm ET US. Avram Gold, MD, Sleep Medicine Pulmonology. Joe Borelli, MD, Radiology, UARS lived experience. Host: Renegade Research.
ALT Screenshot of pdf public comment in center with red folder background. White text with black background. Text: #MEAction CMS public comment submitted. Please submit your comment by July 31st. We provide a template. meaction.net
